I am really going to try to update more often. We have been busy and no sign of a slowdown in sight. Juliana seems to be recovering well. She is still on oxygen at home, but hopefully we will be off of it soon. Please continue to pray for her as she continues to recover.
This week is going to be busy. I am having a cavity filled Monday. Juliana sees her cardiologist on Tuesday. Hopefully Elena will see ENT for followup from tubes on Tuesday also. And the BIG day is Wednesday. Elena will have surgery on her cleft palate. This will be difficult for all of us. Obviously on her as she spends approx. 5 days in the hospital, sleeping in her car seat (to remain upright), elbows splinted for 3 weeks (to keep her hands and other random things out of her mouth), and a liquid diet for I'm not sure how long.
It will be difficult for me to entrust the care of Juliana to others while I stay with Elena. Juliana is still recovering from her surgery and still fragile. I am praying Elena's stay is shorter so that I can be with both of them.
Hopefully after this summer of surgeries, we will be all well and ready to start created a new normal routine.