Showing posts with label Juliana. Show all posts
Showing posts with label Juliana. Show all posts

Saturday, January 12, 2013

Elena and Juliana Updates

It has been awhile since an update and lots of cool things are happening in our girls' lives so here goes:

Elena is just so smart and sassy.  Thanks to her awesome teachers at school, she recognizes all of her letters and is attempting to make their sounds.  She is so close to being potty trained and honestly if her parents worked harder at it she probably would be completely potty trained.  She is still quite bossy to her sister but has become a lot sweeter towards her also.  She loves playing with baby dolls.  She will rock them, sing to them and push them in a stroller or shopping cart. She also trys to teach them all the things we are teaching her like washing hands, using the potty, and eating.  She, of course, is very bossy to her baby and tells her all about the things she is not allowed to do, which coincidentally happen to be the same things she gets in trouble for often, like pulling on the blinds.  It is so fun to watch her grow and learn.  I find myself thinking about who she will be in a few more years!

Juliana is still very sweet, but is becoming quite sassy like her sister.  She has definitely learned the word, 'No'!  Of course, not learned as in stopping when hearing it, but mostly in how to say it in protest to what we are asking her to do.  She is no longer on heart medication! Woo-hoo for that!  She knows many signs and says some words.  She finally got some front teeth!  Juliana first got her top molars, then her bottom molars, then 2 front bottom teeth, then 1 front tooth and a second molar on the top right side; now she is finally getting the 2nd top tooth.  You would never have known she was so toothless with the amount she eats and what she eats.  All 23 pounds of that little girl LOVES to eat.  She is also pretty close to being potty trained.  She and her sister love to cheer each other on.
Photo: Running away   

Wednesday, July 13, 2011

13.4 lbs and NO MORE OXYGEN!!!

Juliana saw her cardiologist today and took her off oxygen.  She is still on 2 medications and we will let her body grow out of them.  She is also up to 13.4 lbs.  She was 11.5 when we first got her.  This girl has been eating us out of house and home but she is growing and oh so active.  Today at the doctor's office she was all over that table trying to flip and flop to eat the paper.  She jabbers all day and blows bubbles.  She has made so much progress and I just love watching her every move. :)

Wednesday, June 8, 2011

Pneuma NOOOO!

Juliana got her breathing tube taken out today, she is now on oxygen through the nose.  She also got her PA line taken out (basically a big IV in her right wrist).  We are hoping tomorrow they will take out her central line and chest tube.  Those are some BIG goals.  Last night she had a fever so they drew some cultures but won't have the result until tomorrow.  She spiked again while I was eating dinner back at the Ronald McDonald House.  They went ahead and gave her some antibiotics until they get those cultures back.  She is pretty congested.  We are just hoping and praying she doesn't have pneumonia.  I don't think she does but know it is a possibility.  She was more awake today but no smiles :(  She went most of the day without pain meds.  But she was getting pretty fussy this evening and they gave her some.  Nothing we did would make her happy.  I can't wait to hold her again.  And I can't wait until she is smiling again.  I think it is harder now seeing her even without all the extra tubes and wires she has had.  She is now awake and frustrated because she can't cough up the stuff in her lungs so we basically have to make her gag so she will cough.  The doctor seems encouraged by how she is looking.  She will probably at least for the time being, go home on Sildenafil (Viagra) and maybe some Lasix.  But that is still too far in the future to know.  Thank you all for your support!

Kelly